Thursday, February 6, 2014

Meet Lexi... My CHD Hero

Meet Lexi... She is my Congenital Heart Defect (CHD) Hero!


She was diagnosed with Tetralogy of Fallot when she was around 4-5 months old in my tummy. She was a tiny baby that did not want to grow so the doctor decided to bring her into the world a few weeks early. 

At 4 pounds and 12 ounces she was the cutest baby in the entire world. Sadly, she was born with more issues that were not related to her heart so she had to stay an extra 2 weeks in the NICU until she started to gain weight. 

When Lexi was almost 5 months old, she had an operation to repair her heart. She did not heal as quickly as most of the other heart patients so she had to stay 2 weeks in the hospital and go home with a pic line.


Since her operation, we've been lucky. We go every year for a heart check up and each time we've had a good report. (Knock on wood)

CHD Awareness is February 7-14th.. keep an eye on the blog for posts related to more of Lexi's story, the struggles and pain of finding out your child is sick, and some overall tips.

Written by: Aimee Fauci

8 comments:

  1. Can't wait to see the post. And I so happy she has been doin' well

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  2. How sweet. I can't handle photos of littles on machines.. it just breaks my heart. But at the same time, I love seeing how far she has came and how strong of a fighter she is. I'm such a softy!

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  3. Little Lexi has came a long way! She has a great mommy as a mother--lucky girl!

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  4. She is one tough kid, Rock on !

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  5. Indeed, she's a little hero and a fighter! Look forward to reading more about her story and your tips. Thanks for sharing

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