She was diagnosed with Tetralogy of Fallot when she was around 4-5 months old in my tummy. She was a tiny baby that did not want to grow so the doctor decided to bring her into the world a few weeks early.
At 4 pounds and 12 ounces she was the cutest baby in the entire world. Sadly, she was born with more issues that were not related to her heart so she had to stay an extra 2 weeks in the NICU until she started to gain weight.
Since her operation, we've been lucky. We go every year for a heart check up and each time we've had a good report. (Knock on wood)
CHD Awareness is February 7-14th.. keep an eye on the blog for posts related to more of Lexi's story, the struggles and pain of finding out your child is sick, and some overall tips.
Written by: Aimee Fauci